Blog

Great afternoon at Sunderland for last game of the season. We had the pleasure of this lovely family with us today! Keep fighting Dylan xx
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I really hope that NICE pass the antibody to be giving on the NHS. Families are worried sick their child might not get potential life saving treatment.

I have wrote to the prime minster about this asking for her support. I am pleased to say I got a very nice letter back and she has arranged for me to meet Jeremy Hunt and Steve Brine to discuss this.

Please show your support 🙏🏻🙏🏻🙏🏻
Hi Guys can you please take a moment to read this? Bradley’s little fighters need your help to share it far and wide.

There has been a press release today regarding antibody treatment for children with Neuroblastoma called dinutuximab beta that is currently going through NICE to see if it can be given to our children on the NHS. This has been a long process so far and the information NICE have released today is not looking good. They believe that the drug is too expensive to give to our children and not cost effective enough, although it is only 0.05% of the yearly budget.

This antibody has been on trial for several years and is showing promising results. It is believed to give a child an extra 20% chance of survival. This may not seem a lot but speaking from my heart and experience when you think your child could die it is a life line.

Not only does it improve chance of survival it can also kill off stubborn tumours. Bradley still had disease when he went into the antibody treatment and none of us thought it was ever going to go but it did because of dinutuximab beta. Hearing the news my baby boy was cancer free was incredible hearing his voice shouting “yeaaaa the nasties have gone I kicked cancers butttt” was unbelievable and a memory I will treasure for the rest of my life.

This drug is being used in the USA, and other parts of Europe, I really hope all involved with the decision to approve this drug come to a prompt and effective solution as soon as possible.

New drugs for any childhood cancer are far and few between. We need to move forward with this not back. Do we really want to behind other countries in cancer treatment?? Or do we want to show the world we are just as good if not better???

What are your thoughts on this? Can you support our little fighters by commenting liking and sharing? Can you ask your friends and family to share to?

Together we can make a difference❤️❤️

How cute is my baby on here? He has s smile that could lighten any room 😇😇😇
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Today’s registration day is at NPower at Rainton House in Houghton le spring.

The process of signing up is a simple form and a swap. It really is that easy!

If your in the building make sure you pop down. If your not and would still like to sign up you can do it online here: https://www.dkms.org.uk/en/aheroforchloe #aheroforchloe
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BradleyLowerysFightAgainstNeuroblastoma
4th of May 2018 08:57 AM
To the staff at npower (Rainton Bridge), we are accompanying DKMS UK today from 10am for a registration day. Please please register it could save someones life like Chloe's DBA fight #aheroforchloe and Henry's Little Heroes and lots of other people! #dkms #bradleyloweryfoundation #workingtogether
It seems everyone is enjoying our little Throwback Thursdays so here’s another one for you all! ❤️

This is one of our favourite photos of Brad. What’s your favourite?
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We have some wonderful news!

Little Evan's pushchair has finally arrived. We would like to say big thank you for everyone's support towards Evan's campaign.

Comment a 👍🏻 to show your support
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Guess who got his ears turned on today,

Quote from Benji’s mam -

Today our little boy was activated!👂🏻👂🏻👂🏻 welcome to the noisy world of sound Benji!! We want to thank every single person who helped to get us here. It will help change Benji’s life xxx #benjismagicears
We are so thrilled for Benji and the family, take a look at the video on their page, hankies at the ready xxx
Today is the lovely little Siobhan’s 3rd birthday. Siobhan recently found out her cancer has returned meaning we need to raise even more funds for her treatment. ❤️

Siobhan’s fundraisers held a spring ball on Friday night to raise funds for her treatment in the USA. Lynn from The Bradley Lowery Foundation attended and it was a huge success!

We are pleased to announce that they raised £100,000. This is fantastic news!

Let’s use this opportunity to give her a birthday boost and get Siobhan even closer to her target needed for her treatment in the USA.

You can donate via just giving here: https://www.justgiving.com/campaigns/charity/thebradleyloweryfoundation/siobhanmather
or text MATH01 £amount to 70070
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We are looking to plan the year ahead, we have had such a successful year so far and we would like to carry this on. We have lots of great ideas for some fundraising events, even Bradley got involved in his own fundraising by shaving off his hair because it was falling out off the Chemo ❤️

Is there any fundraising events you would like to see us do, or could you get involved by doing your own fundraising for The Bradley Lowery Foundation?
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Morning everyone, happy Sunday to you all.

Today is National Superhero day. Brad loved dressing up as a superhero.

Post a picture of your mini superhero’s below.

⬇️⬇️⬇️⬇️
#superhero #myhero
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Morning everyone, this is beautiful Eden.💗

Eden was diagnosed with Neuroblastoma on the 6th July 2017, when she was just 2.

Neuroblastoma is an aggressive form of childhood cancer which has an 80% chance of relapse within the first 2 months.

This fact is horrifying but the sad truth but we are all determined to do everything possible to minimise this from happening.

The cost of this treatment is a massive estimated £200,000. This will cover all medical costs.

If you are able to donate anything at all we would be so grateful. 💗 If you are unable to, simply give Eden’s page a like and share to follow her journey💗

To donate - Just Giving page here:
https://www.justgiving.com/campaigns/charity/thebradleyloweryfoundation/edeneyre
The Eden Eyre Fairy Project
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BradleyLowerysFightAgainstNeuroblastoma
28th of April 2018 06:55 AM
So sad to hear about the beautiful Alfie Evans I’m sending all my love to Alfie’s parents, they did everything they could for their little boy. RIP sweetheart, fly high with them angels and go have some fun with my baby boy 💜💜💜
Hi guys please take a few minutes to watch the beautiful Kira and her heart broken mum on the news. Kira is in desperate need of funds. If you can help in any way pop over to her page.
#savekira #kirathemachine
Around 7000 people in the UK are awaiting organ donation many people die waiting for their second chance at life. Miika’s family feared he would be one of those people. Finally after over a year of waiting little Miika received a heart transplant that saved his life.

You could help someone carry on living by signing up here:
https://www.organdonation.nhs.uk/register-to-donate/register-your-details/
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For everybody who follows the beautiful Siobhan will know that yesterday her family put a post on to say that Siobhan has relapsed, we are all absolutely devastated about this.

However, this just means that we need to raise more money and fight harder to make sure she receives the best possible treatment she needs to save her life.

Siobhans family and fundraisers have organised a Spring Ball tonight and I hope everyone has a fantasic time and raises lots of money for this lovely little girl 💗💗 #oursuperstar #teamsiobhan
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There’s #ThrowbackThursday of our beautiful boy to brighten up your week!
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I met Kira at a conference last year, she is a beautiful young lady who deserves a chance to live life. Kira is not with the Bradley Lowery Foundation but on occasions like this all that matters is the child and not the charity they raising funds with. Kira is in urgent needs of funds to save her life. Please if you can go over to kiras page and donate if you can’t donate just comment share and like this post to get her story out there. #togetherwecanmakeadifference
Ivy-Louise is having an important operation today, please keep her and her family in your thoughts. #YouCanDoThis #ChildhoodCancer #Support #Neuroblastoma

Ivy-Louise Fight Against Neuroblastoma
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We’ve had a few Birthdays over the last week,

The Bradley Lowery Lowery Foundation would like to wish Jack and Maddi a huge HAPPY BIRTHDAY to

Jack Hall who was 14 on Saturday Birthday on Saturday and Maddi Thurgood's who is 17 Today.

Let wish our smilers a huge Happy Birthday !!! ...



You can donate to Maddi by texting GENE96 £amount to 70070

Or Visit her Facebook page here: https://www.facebook.com/SaveOurMaddiAppeal/
And

You can donate to Jack by texting STEM94 amount to 70070

Or Visit his Facebook Page here: https://www.facebook.com/Jack-Halls-Journey-155742885095818/
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Please keep supporting Bradley’s legacy by following the progress of his charity

Your Newsfeed recently shows only posts from the same few people, about 25, repeatedly the same, because Facebook has a new algorithm. 🙅🏻‍♀️
Their system chooses the people who will read your post. However, I would like to choose for myself, Therefore, I ask you all a favor - If you are reading this message leave me a quick comment, a "hello", a sticker, whatever you want, so you will appear in my news feed‼️
Otherwise Facebook chooses who to show me and I don't need facebook to choose my friends! 🤬
Do not hesitate to copy and paste on your wall so you can have more interaction with all your contacts and bypass the system. That's why we don't see all posts from our friends.😮
Thanks for the heads up from those who already copied and pasted the above.

Anyways here is a beautiful smile to cheer up your day.

Remember guys smile and the whole world smiles with you.
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Watch out for these stickers coming through your door, The Bradley Lowery Foundation are now working closely with Clothes Aid.
Do you have any unused clothes you would like to donate. These Stickers/Bags will be coming through your door soon.
The Bradley Lowery Foundation will get 100% of the profits.
This is great news for the foundation.
We would like to say a huge thank you to Ear For Alex, for the lovely smiles he gave us for these photo's. xxx
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Lazy Sundays normally means one thing. I sit and watch videos and look at photos of my boy. Iv come across this one and I think it’s very fitting. This message off Bradley is for everyone that has supported and are still supporting the #bradleyloweryfoundation
Yesterday we held a DKMS registration day at the Cleveland centre in Middlesbrough. We had a great day but still need to find a match for many children like Chloe.

We are looking to hold more registration days so if you have any ideas for venues please comment and let us know! Maybe we would hold one in your work place

You can also register online here: https://www.dkms.org.uk/en/register-now
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Here it is, big news for josh.

HE HAS HIS NEW BED!!!

He’s enjoying his first night in his cosy bed!

This really will change his life, thanks to everyone that has supported josh and helped him get this far.

We are still aiming to do the rest of Joshua’s bedroom with interactive floor, ball pit etc so watch this space!

Thank you all again.

https://www.justgiving.com/campaigns/charity/thebradleyloweryfoundation/joshuadenton
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Alfie is coming up 16 next month, he has been fighting Neuroblastoma for over a decade. He has a message for everyone fighting this great fight xxx
We would like you all to meet Huey.
Huey was born 14 weeks early. He fought for his life in an incubator, battled through 2 brain surgeries, and had many blood transfusions to name just a fraction of the struggles he has faced in his tiny life. Huey has cerebral palsy, dystonia, chronic Lung disease and severe reflux. Working with Huey’s family we are trying to raise £4000 for a piece of equipment that could get little Huey walking.

To learn how to donate and read more about Huey’s journey please visit his Facebook page here: https://www.facebook.com/Hooray4Huey/
https://www.justgiving.com/campaigns/charity/thebradleyloweryfoundation/huey1
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#throwbackthursday to finish the day off with ❤️💙 #bradleyscheekysmile #gorgeous #bradleylowery #bradleyloweryfoundation
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Kaleigh was diagnosed on the 19th April 2016 with a very aggressive brain tumour called DIPG.
When Kaleigh was first diagnosed she had 30 radiation treatments however on the 28 Dec Kaleigh progressed and has to have a further 10 session of radiation.
After extensive research Kaleigh was going to be the first child in the uk to have a treatment called CED at the Harley street clinic in london, unfortunately due to further progression and growing cysts on Kaleigh’s brain, this treatment could no longer be done.
Through the research the parents carried out, they discovered a treatment on Mexico, and took Kaleigh over to start their treatment, although, the Drs in the uk advised us not to go, they have continued to support the family and Kaleigh.
Drs in the uk give children only 9 month after diagnosis, however after receiving treatment in Mexico Kaleigh has reached her 2 year milestone, this is fantastic news for Kaleigh and her family.
Please post a heart in the comments to show your support xxx
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We think it is probably time we explain what DIPG is for all of you that may not know.

DIPG is a rare brain cancer, found mostly in children. The tumour is found in the middle of the brain making it very difficult to treat. Currently the treatment options in the UK are very limited this is why children like Kaleigh and Edie are travelling to Mexico for Intraarterial treatment. At present there is no cure for this harsh cancer but the treatment offered in Mexico has been proven to reduce or stabilise the tumour.

To read more about Kaleigh’s story please visit her Facebook page here: https://www.facebook.com/Kaleighstrust/
To read more about Edie’s journey please visit her Facebook Page here: https://www.facebook.com/thespideredeappeal/?ref=br_rs
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